JuliannaSnow:AYoungGirlThatDecidedToDie5岁小女孩朱莉安娜，自己决定自己的生死

JulianaSnowwasayounggirlwhowasbornwiththeneuromusculardiseasethatisincurable.Sherecentlypassedawayandaccordingtoherparentsandmedicalofficialsitwassnowschoice.Herparentsaskedstillwhetherornotshewouldwanttogotothehospitalorstayathomeofanythingdramatichappentohermetically,Snowtoldthemshewantedtostayhome.Manybelievethistobetoodifficultofadecisiontobemadebyafiveyearold,herparentsanddoctorsdisagree.ArtCaplan,thedirectorofthedivisionofmedicalethicsatNewYorkUniversitySchoolofMedicinestatedshetaughtmethatevenachildcanconveyremarkablefeelingsaboutherillness.

朱莉安娜出生时就患有无法医治的神经肌肉疾病。她于近日离世，从父母和主治医师那里我们得知，那是她自己的选择。她的父母问过她，如果悲剧发生，医院还是呆在家里，朱莉安娜告诉他们她想呆在家里。许多人认为，对一个五岁的孩子而言，这个决定相当困难，但她的父母和医生不同意这种看法。纽约大学医学院医学伦理部的卡普兰主任认为，她教会我，即使是小孩也能表达对自己疾病的独特感受。

JuliannaSnow,thelittlegirlwhotouchedmillionswithherapproachtoterminalillness,diedathomeinhermothersarmsonTuesday.

小女孩朱莉安娜因为面对不治之症的态度而感动了数百万人，本周二，她安眠于母亲怀中。

JuliannaSnow,a5-year-oldgirlwithadeadlyillness,isoptingforheavenoverbeingonarespiratorinahospitalenduringendlesstreatments.SnowhasneverbeenwellenoughtoattendSundayschoolattheCityBibleChurchinPortland,Ore.Shesheardallaboutheavenfromherparentsandseesnoreasontofightwhatdoctorshavediagnosedasanear-hopelessmedicalcondition.

五岁的小女孩朱莉安娜生下来就患有不治之症，她选择在家中迎接天堂，而不医院里接受无止境的治疗。由于身体状况的原因，朱莉安娜没办法去波特兰市教堂的主日学校上课。她从父母那里知道了天堂，并且意识到没有理由去反抗医生已经作出的近乎无望的医学诊断。

Theyounggirlislikelytodiesoonerthanlaterdueaseverecaseofanincurableneurodegenerativeillness,knownasCharcot-Marie-Toothdisease,WPTVreportsonOctober28.IfJuliannaSnowevengetsaninfection,sheslikelytowindupwithdeadlypneumoniabecauseherlungsaretooweaktowithstandcoughingorhardbreathing.Shecouldenduponarespiratorwithaverylowqualityoflife.

这位年轻的女孩因为无法医治的神经肌肉疾病（腓骨肌萎缩症）可能会很快离世。如果朱莉安娜发生感染，她的病情会因为肺炎而迅速恶化。因为她的肺已经无法承受咳嗽和呼吸困难的状况了。她会在呼吸面罩的帮助下维持一段时间的生命。

MichelleMoonandSteveSnowhaveexplainedtotheirdaughterthatwhenshegoestoheaven,theywontbethereyet--norwillherbrother,Alex.Juliannawantstoskipthehospitalsufferingandgotoheavenwheresheunderstandsthathergreat-grandmotherisat.Shealsounderstandsthatwhenshegetsthere,shecandoallofthethingsshecurrentlycantdonow...likeplayingandeatingnormally.

米歇尔和斯蒂夫向他们的女儿解释，当她进入天堂，他们还不会在那里--她的弟弟埃里克森也不在那里。医院痛苦的治疗过程，而去到天堂。她知道她的曾祖母在那里。她也知道当她到达时，她能做所有她现在无法做的事情...例如玩耍和正常的进食。

JuliannaSnowsparentsaskedherattheageoffourifshewouldbewillingtogotothehospitalthenexttimeshegetsseverelysickorwouldshewanttostayhomewheresheddieinpeace.The5-year-oldsaidshedoesntwanttogothehospitalbecauseshewantstobeinthe







































哪个医院治疗白癜风
白癜风早期能治愈吗


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